First of all I would like to thank everyone for the donations for research, sharing the link, and sharing the message of Orthostatic Tremor (OT). To date $1,875 has been donated to the fund for this crippling disease. I couldn’t be more proud. If you haven’t donated, I will have the link at the top and bottom of this blog. No amount is to small, every single dollar is important and 100% goes to the research fund. This is not money going to myself. Thank you.
Now on to the lucky ones. What could I possibly mean by that? Today’s Mass at church was dedicated for my sister Stephanie whom as of January 8th of this month has joined her Lord and Savior, 12 years ago. I have friend who recently lost his beloved father to cancer just this past week. Everyone of us has a loved one or more who has lost someone to a terribly awful disease, illness or accident. Sometimes you’re only given a year, month, day, or no time at all to prepare for this loss. It doesn’t matter if you’re rich, poor, famous, or an every day Joe. It’s completely unfair, cruel and makes no earthly sense.
So what about the lucky ones? I consider myself to be one of the lucky ones. Why? Yes, I have a debilitating disease. I could hardly stop shaking during Mass from the tremors. But with accommodation, I can live a long life, even if the symptoms get really bad. I learned that from some of my good friends I met in Omaha. I have tremors. I have poor balance and run into fifty things a day. I can’t stand in one spot for more than 30 seconds without shaking the floor, and that’s on a good day.
But, I do not have a tumor eating away a some part of my body. I’m not in constant excruciating pain all day long. I also God willing, have not been personally involved in a horrific accident. My nephew Alex, whom I have talked about previously was lost to us in a tragic hunting accident 3 years ago. But again me personally, have not suffered in this way. This is about as positive that I can be in regards to my own situation.
Yes, OT has been a life changing event for me and my family, but I still consider my self lucky. To this point, I’m not completely debilitated, my mind is strong and on most days you wouldn’t know I had a rare disease unless you were standing right next to me.
So yes OT sucks for lack of a better word, but my world, my OT brothers and sisters world could certainly be a lot worse. Just one thing to hang our hats on. Positive attitude and one day at a time!!
Thank you for reading, sharing and commenting on these blogs. I welcome thoughts and criticism, but most of all I appreciate the support.
Have a fantastic week, and as always God Bless!!