I’ve come to the conclusion that nobody really cares about a disease, illness or an event that doesn’t affect them directly or indirectly. Especially the rare ones.

People may care about me personally or enjoy my writing style, but that is where the connection stops.

I have some real soul searching to do before I can go on in this matter. I’m happy to say that the GoFundMe has raised $500 for research. I will gladly hand it over to Dr.Torres and his team. Other than that, I really don’t have much to say.

Have a pleasant evening.



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